Every Child Matters

Every Child Matters

The disease may not have a name or identity, but every child does. Rare childhood disorders impact an estimated 1 in 150 births, but we believe one child is one too many. Rather than fighting one specific disease, we at the Center for Rare Childhood Disorders (C4RCD) rally around each child, joining with loved ones, medical staff, researchers and the larger scientific community to find the genomic causes and new treatments for a broad spectrum of illnesses.

For parents, loved ones and caregivers, this also means bringing patients and their families together to share their stories.

Ryder's Mom

Ryder's Mom

Ryder Cash Hauer was born on September 5, 2009. Immediately, his parents and family fell in love with this handsome 9 pounder! He entered the world without a peep, but was content to observe his surroundings.

Ryder's Mom
Belnap Family

Belnap Family

Seth Belnap is an energetic 6-year-old from Show Low, Arizona, ready to engage in a conversation with anyone, and a constant source of joy in his family.

Belnap Family
Shelby's Story

Shelby's Story

Shelby Valint’s birth in August 2000 — the second of eventually four girls — went off without a hitch. Her mother carried to term with no complications and within 24 hours both mother and daughter were safely and happily on their way home.

Read Shelby's Story